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TOWIE star to hold fundraiser in aid of sister with rare condition

 I am writing with some exciting news that might be of interest to your readers and will raise awareness of a rare condition.  
TOWIE's Kelsey Stratford's younger sister has a very rare neuromuscular condition called Spinal Muscular Atrophy and Kelsey is hosting a fundraising event at the Ivy in Soho on the 18th August to raise funds for the charity, SMA UK. 
She has an exclusive guest list attending on the night.

Please see press release below and an image attached. 
If you would like any further quotes or images please do no hesitate to get in touch - my details are below.

Many thanks,

Lucy de'Lemos 

Head of Communications and Fundraising, Spinal Muscular Atrophy UK 

TOWIE’s Kelsey Stratford to host event for her sister in aid of SMA UK

Former TOWIE star Kelsey Stratford is hosting a glamorous evening of fundraising this Thursday (18th August) to raise money for Spinal Muscular Atrophy UK (SMA UK).

Kelsey, who is an ambassador for the charity, is hoping to raise as much as possible to help support those affected by SMA, like her 9-year-old sister Kennedy.

SMA is a genetically inherited condition which causes muscle weakness and until recently, there were no treatments available.  However, three potential treatments have been made available by pharmaceutical companies over the past five years and, thanks to the advocacy of charities like SMA UK, these are now available to some patients through the NHS.

Kelsey says “I am really excited to be holding this event for a cause that is so close to mine and my families hearts.  I hope that we can raise awareness about Kennedy’s condition as well as some money which will help others like her.”

The event falls in SMA Awareness Month and will help SMA UK to spread the word about their most recent campaign, which is calling for newborn screening for SMA to be introduced in the UK.

Charity CEO Angela Smith-Morgan explains why this is so important “To ensure the best possible reaction to treatment, it is essential that babies are treated for SMA before symptoms develop, by which point damage to neurons is irreversible. Newborn screening is the quickest route to a diagnosis of SMA and should be introduced today. The UK lags behind many other European countries and babies are missing this critical treatment window.”

If you would like to donate and support Kelsey’s fundraising please go to or to find out more about SMA UK and the campaign for newborn screening go to

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Notes for Editors

Contact:  Lucy on

Spinal Muscular Atrophy (SMA) is a rare, genetically inherited neuromuscular condition.  It causes progressive muscle weakness and loss of movement due to muscle wasting (atrophy).  SMA is passed from parents to their children through the SMN1 gene which is carried by approximately 1 in 40 people in the UK.

SMA UK are an established charity that supports and empowers anyone affected by Spinal Muscular Atrophy.  They are advocates for better services and access to new treatments, raise public awareness and fund research-related initiatives.  For more information please visit 

SMA UK Registered Charity Number: 1106815

Company Limited By Guarantee Number: 5137534